White Rose

Hello Friends,

This is the beginning of my White Rose series. What is the White Rose series you ask? This series is all about my younger sister who has special needs. I’ll be sharing little pieces of her life and how she’s impacted others. Regarding the title, “White Rose”: I chose “White” because she’s my angel, and “Rose” because that’s my middle name and she is the reason I am who I am today. Any good in me is because of her.

Let me introduce her, drum roll please…….

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Her name is Elaine Nicole and she is 21-years-old, full of joy, sass, and love. She was diagnosed with Prader-Willi Syndrome when she was 2 years old. If you are unfamiliar with this disorder, here is a little info from the Prader-Willi Syndrome Association website (link is also provided in case you want more info!)

“Prader-Willi Syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. Some symptoms are: low IQ, a heightened interest in food which leads to obesity, short stature, loads of sassiness(not really, but really), & obsessive compulsive tendencies.” For more info head over to this site:

https://www.fpwr.org/about-prader-willi-syndrome/?gclid=CN–nbjN8tMCFVhMDQodOtULug

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She has the tiniest little hands and feet but the world’s biggest laughter and heart. The color orange, cats, rosters, & puppies make her smile.  For those of you who have a friend, sibling, or child with special needs, you can imagine the earthquake that ran through our family when we found out. It is earth shaking but also life creating. The Lord took my family down a different path when she was born. To me, she is our families’ little jackpot. I will be sharing many more stories of her life so please stay tuned!

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P.s. I can’t wait to share the photo session I have planned with her, EEK! Might be my favorite photo session idea yet!

 

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P.s.s. I’d love to hear your stories too! If you’ve been impacted by someone with special needs send me your story at info@janellerosephoto.com. I want to include your stories in a little project I’m working on!

 

Hugs,

Janelle Rose

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